Cognitive interviews guide design of a new CAM patient expectations questionnaire

Persistent Link:
http://hdl.handle.net/10150/610365
Title:
Cognitive interviews guide design of a new CAM patient expectations questionnaire
Author:
Sherman, Karen; Eaves, Emery; Ritenbaugh, Cheryl; Hsu, Clarissa; Cherkin, Daniel; Turner, Judith
Affiliation:
Group Health Research Institute, 1730 Minor Avenue, Suite 1600, Seattle WA 98101, USA; Department of Family and Community Medicine, University of Arizona, 1450 N Cherry Avenue, Tucson AZ 85719, USA; Center for Community Health and Evaluation, Group Health Research Institute, 1730 Minor Avenue, Suite 1600, Seattle WA 98101, USA; Department of Psychiatry and Behavioral Sciences, University of Washington, Box 356560, Seattle WA 98195-6560, USA
Issue Date:
2014
Publisher:
BioMed Central
Citation:
Sherman et al. BMC Complementary and Alternative Medicine 2014, 14:39 http://www.biomedcentral.com/1472-6882/14/39
Journal:
BMC Complementary and Alternative Medicine
Rights:
© 2014 Sherman et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0)
Collection Information:
This item is part of the UA Faculty Publications collection. For more information this item or other items in the UA Campus Repository, contact the University of Arizona Libraries at repository@u.library.arizona.edu.
Abstract:
BACKGROUND:No consistent relationship exists between pre-treatment expectations and therapeutic benefit from various complementary and alternative medicine (CAM) therapies in clinical trials. However, many different expectancy measures have been used in those studies, with no validated questionnaires clearly focused on CAM and pain. We undertook cognitive interviews as part of a process to develop and validate such a questionnaire.METHODS:We reviewed questions about expectations of benefits of acupuncture, chiropractic, massage, or yoga for pain. Components of the questions - verbs, nouns, response options, terms and phrases describing back pain - were identified. Using seven different cognitive interview scripts, we conducted 39 interviews to evaluate how individuals with chronic low back pain understood these individual components in the context of expectancy questions for a therapy they had not yet received. Chosen items were those with the greatest agreement and least confusion among participants, and were closest to the meanings intended by the investigators.RESULTS:The questionnaire drafted for psychometric evaluation had 18 items covering various domains of expectancy. "Back pain" was the most consistently interpreted descriptor for this condition. The most understandable response options were 0-10 scales, a structure used throughout the questionnaire, with 0 always indicating no change, and 10 anchored with an absolute descriptor such as "complete relief". The use of words to describe midpoints was found to be confusing. The word "expect" held different and shifting meanings for participants. Thus paired items comparing "hope" and "realistically expect" were chosen to evaluate 5 different aspects of treatment expectations (back pain; back dysfunction and global effects; impact of back pain on specific areas of life; sleep, mood, and energy; coping). "Impact of back pain" on various areas of life was found to be a consistently meaningful concept, and more global than "interference".CONCLUSIONS:Cognitive interviews identified wordings with considerable agreement among both participants and investigators. Some items widely used in clinical studies had different meanings to participants than investigators, or were confusing to participants. The final 18-item questionnaire is undergoing psychometric evaluation with goals of streamlining as well as identifying best items for use when questionnaire length is constrained.
EISSN:
1472-6882
DOI:
10.1186/1472-6882-14-39
Keywords:
Cognitive interviews; Questionnaires; Expectations; Low back pain; Acupuncture; Chiropractic; Massage therapy; Yoga
Version:
Final published version
Additional Links:
http://www.biomedcentral.com/1472-6882/14/39

Full metadata record

DC FieldValue Language
dc.contributor.authorSherman, Karenen
dc.contributor.authorEaves, Emeryen
dc.contributor.authorRitenbaugh, Cherylen
dc.contributor.authorHsu, Clarissaen
dc.contributor.authorCherkin, Danielen
dc.contributor.authorTurner, Judithen
dc.date.accessioned2016-05-20T09:05:13Z-
dc.date.available2016-05-20T09:05:13Z-
dc.date.issued2014en
dc.identifier.citationSherman et al. BMC Complementary and Alternative Medicine 2014, 14:39 http://www.biomedcentral.com/1472-6882/14/39en
dc.identifier.doi10.1186/1472-6882-14-39en
dc.identifier.urihttp://hdl.handle.net/10150/610365-
dc.description.abstractBACKGROUND:No consistent relationship exists between pre-treatment expectations and therapeutic benefit from various complementary and alternative medicine (CAM) therapies in clinical trials. However, many different expectancy measures have been used in those studies, with no validated questionnaires clearly focused on CAM and pain. We undertook cognitive interviews as part of a process to develop and validate such a questionnaire.METHODS:We reviewed questions about expectations of benefits of acupuncture, chiropractic, massage, or yoga for pain. Components of the questions - verbs, nouns, response options, terms and phrases describing back pain - were identified. Using seven different cognitive interview scripts, we conducted 39 interviews to evaluate how individuals with chronic low back pain understood these individual components in the context of expectancy questions for a therapy they had not yet received. Chosen items were those with the greatest agreement and least confusion among participants, and were closest to the meanings intended by the investigators.RESULTS:The questionnaire drafted for psychometric evaluation had 18 items covering various domains of expectancy. "Back pain" was the most consistently interpreted descriptor for this condition. The most understandable response options were 0-10 scales, a structure used throughout the questionnaire, with 0 always indicating no change, and 10 anchored with an absolute descriptor such as "complete relief". The use of words to describe midpoints was found to be confusing. The word "expect" held different and shifting meanings for participants. Thus paired items comparing "hope" and "realistically expect" were chosen to evaluate 5 different aspects of treatment expectations (back painen
dc.description.abstractback dysfunction and global effectsen
dc.description.abstractimpact of back pain on specific areas of lifeen
dc.description.abstractsleep, mood, and energyen
dc.description.abstractcoping). "Impact of back pain" on various areas of life was found to be a consistently meaningful concept, and more global than "interference".CONCLUSIONS:Cognitive interviews identified wordings with considerable agreement among both participants and investigators. Some items widely used in clinical studies had different meanings to participants than investigators, or were confusing to participants. The final 18-item questionnaire is undergoing psychometric evaluation with goals of streamlining as well as identifying best items for use when questionnaire length is constrained.en
dc.language.isoenen
dc.publisherBioMed Centralen
dc.relation.urlhttp://www.biomedcentral.com/1472-6882/14/39en
dc.rights© 2014 Sherman et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0)en
dc.subjectCognitive interviewsen
dc.subjectQuestionnairesen
dc.subjectExpectationsen
dc.subjectLow back painen
dc.subjectAcupunctureen
dc.subjectChiropracticen
dc.subjectMassage therapyen
dc.subjectYogaen
dc.titleCognitive interviews guide design of a new CAM patient expectations questionnaireen
dc.typeArticleen
dc.identifier.eissn1472-6882en
dc.contributor.departmentGroup Health Research Institute, 1730 Minor Avenue, Suite 1600, Seattle WA 98101, USAen
dc.contributor.departmentDepartment of Family and Community Medicine, University of Arizona, 1450 N Cherry Avenue, Tucson AZ 85719, USAen
dc.contributor.departmentCenter for Community Health and Evaluation, Group Health Research Institute, 1730 Minor Avenue, Suite 1600, Seattle WA 98101, USAen
dc.contributor.departmentDepartment of Psychiatry and Behavioral Sciences, University of Washington, Box 356560, Seattle WA 98195-6560, USAen
dc.identifier.journalBMC Complementary and Alternative Medicineen
dc.description.collectioninformationThis item is part of the UA Faculty Publications collection. For more information this item or other items in the UA Campus Repository, contact the University of Arizona Libraries at repository@u.library.arizona.edu.en
dc.eprint.versionFinal published versionen
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