Evaluating the Need for Early Stage Alzheimer's Disease Patient-Caregiver Dyad Support Groups in Rural Washington

Persistent Link:
http://hdl.handle.net/10150/593628
Title:
Evaluating the Need for Early Stage Alzheimer's Disease Patient-Caregiver Dyad Support Groups in Rural Washington
Author:
McPherson, Julie Ann
Issue Date:
2015
Publisher:
The University of Arizona.
Rights:
Copyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.
Abstract:
Advances in diagnostic tools and disease slowing treatments have led to an increased focus on diagnosing Alzheimer's disease (AD) during the early stages of the disease. Early diagnosis of AD improves quality of life for patients and caregivers by allowing for participation in disease slowing interventions. However, early diagnosis of AD may have unintentional psychological and social consequences for patients and caregivers. To combat these potential consequences, it is important that psychosocial interventions, such as support groups, are available at the time of diagnosis. A review of literature demonstrated that early stage AD patients and their informal caregivers benefited from support groups attended by both patients and caregivers, referred to as early stage AD patient-caregiver dyad (PCD) support groups. However, there is a gap in knowledge regarding the need for early stage AD PCD support groups in rural areas. The purpose of this study was to evaluate the need for early stage AD PCD support groups in rural WA.A needs assessment survey was developed and distributed for a period of one month to four clinics and one senior center in five rural WA towns. Twelve informal caregivers and five community members who did not have AD or care for someone with early stage AD were included in data analysis. Results demonstrated that participants lacked information about early stage AD PCD support groups and barriers to accessing these groups. Even with a lack of information about early stage AD PCD support groups, a majority of participants indicated that these groups would address their many unmet needs, and 52.9% of participants were likely to participate in early stage AD PCD support groups. Further studies should be performed to capture the need for early stage AD PCD support groups in rural WA.
Type:
text; Electronic Dissertation
Keywords:
Rural; Support groups; Nursing; Early stage Alzheimer’s Disease
Degree Name:
D.N.P.
Degree Level:
doctoral
Degree Program:
Graduate College; Nursing
Degree Grantor:
University of Arizona
Advisor:
Martin-Plank, Lorraine
Committee Chair:
Martin-Plank, Lorraine

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.titleEvaluating the Need for Early Stage Alzheimer's Disease Patient-Caregiver Dyad Support Groups in Rural Washingtonen_US
dc.creatorMcPherson, Julie Annen
dc.contributor.authorMcPherson, Julie Annen
dc.date.issued2015en
dc.publisherThe University of Arizona.en
dc.rightsCopyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.en
dc.description.abstractAdvances in diagnostic tools and disease slowing treatments have led to an increased focus on diagnosing Alzheimer's disease (AD) during the early stages of the disease. Early diagnosis of AD improves quality of life for patients and caregivers by allowing for participation in disease slowing interventions. However, early diagnosis of AD may have unintentional psychological and social consequences for patients and caregivers. To combat these potential consequences, it is important that psychosocial interventions, such as support groups, are available at the time of diagnosis. A review of literature demonstrated that early stage AD patients and their informal caregivers benefited from support groups attended by both patients and caregivers, referred to as early stage AD patient-caregiver dyad (PCD) support groups. However, there is a gap in knowledge regarding the need for early stage AD PCD support groups in rural areas. The purpose of this study was to evaluate the need for early stage AD PCD support groups in rural WA.A needs assessment survey was developed and distributed for a period of one month to four clinics and one senior center in five rural WA towns. Twelve informal caregivers and five community members who did not have AD or care for someone with early stage AD were included in data analysis. Results demonstrated that participants lacked information about early stage AD PCD support groups and barriers to accessing these groups. Even with a lack of information about early stage AD PCD support groups, a majority of participants indicated that these groups would address their many unmet needs, and 52.9% of participants were likely to participate in early stage AD PCD support groups. Further studies should be performed to capture the need for early stage AD PCD support groups in rural WA.en
dc.typetexten
dc.typeElectronic Dissertationen
dc.subjectRuralen
dc.subjectSupport groupsen
dc.subjectNursingen
dc.subjectEarly stage Alzheimer’s Diseaseen
thesis.degree.nameD.N.P.en
thesis.degree.leveldoctoralen
thesis.degree.disciplineGraduate Collegeen
thesis.degree.disciplineNursingen
thesis.degree.grantorUniversity of Arizonaen
dc.contributor.advisorMartin-Plank, Lorraineen
dc.contributor.chairMartin-Plank, Lorraineen
dc.contributor.committeememberMartin-Plank, Lorraineen
dc.contributor.committeememberGill, Lisaen
dc.contributor.committeememberSheppard, Kate G.en
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