"I Wouldn't Change Anything": The Everyday Realities of Living with Autism from a Parent's Perspective

Persistent Link:
http://hdl.handle.net/10150/337304
Title:
"I Wouldn't Change Anything": The Everyday Realities of Living with Autism from a Parent's Perspective
Author:
Molina, Rudy Modesto, Jr.
Issue Date:
2014
Publisher:
The University of Arizona.
Rights:
Copyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.
Abstract:
Using qualitative methods, this study is about the attitudes and daily practices of parents who genuinely want the best for their children who have been diagnosed with autism. The study examined the everyday realities of living with autism from a parent's perspective. The purpose of this study was to describe the range of specific behaviors, practices, attitudes, and ways of being that families adopt when they engage in the world of autism. Three families were interviewed in these case studies. A content analysis of the interviews identified five thematic clusters that are described and examined in close detail. The five thematic clusters include (1) managing the diagnostic process, (2) child's behavior and educational needs, (3) impact on parent's well-being, (4) impact on the family as a whole, and (5) full integration into mainstream society. These themes were further categorized according to the "challenges" facing the families and the specific "strategies" families used to face these challenges. Parents shared their stories with the researcher with the hopes that their life experiences could be beneficial to other families facing the same challenges as they navigate complex educational, health, and social systems. The research presents a set of recommendations that were embedded in the participants' stories. These recommendations represent advice from the parents in the study to other parents with children diagnosed with autism. Their recommendations are based on what the participants have learned as they raised their own child with autism.
Type:
text; Electronic Dissertation
Keywords:
Autism; Everyday Realities; High Functioning Autism; Lived Experiences; Parents; Asperger's; Language, Reading & Culture
Degree Name:
Ph.D.
Degree Level:
doctoral
Degree Program:
Graduate College; Language, Reading & Culture
Degree Grantor:
University of Arizona
Advisor:
Gilmore, Perry

Full metadata record

DC FieldValue Language
dc.language.isoen_USen
dc.title"I Wouldn't Change Anything": The Everyday Realities of Living with Autism from a Parent's Perspectiveen_US
dc.creatorMolina, Rudy Modesto, Jr.en_US
dc.contributor.authorMolina, Rudy Modesto, Jr.en_US
dc.date.issued2014en
dc.publisherThe University of Arizona.en_US
dc.rightsCopyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.en_US
dc.description.abstractUsing qualitative methods, this study is about the attitudes and daily practices of parents who genuinely want the best for their children who have been diagnosed with autism. The study examined the everyday realities of living with autism from a parent's perspective. The purpose of this study was to describe the range of specific behaviors, practices, attitudes, and ways of being that families adopt when they engage in the world of autism. Three families were interviewed in these case studies. A content analysis of the interviews identified five thematic clusters that are described and examined in close detail. The five thematic clusters include (1) managing the diagnostic process, (2) child's behavior and educational needs, (3) impact on parent's well-being, (4) impact on the family as a whole, and (5) full integration into mainstream society. These themes were further categorized according to the "challenges" facing the families and the specific "strategies" families used to face these challenges. Parents shared their stories with the researcher with the hopes that their life experiences could be beneficial to other families facing the same challenges as they navigate complex educational, health, and social systems. The research presents a set of recommendations that were embedded in the participants' stories. These recommendations represent advice from the parents in the study to other parents with children diagnosed with autism. Their recommendations are based on what the participants have learned as they raised their own child with autism.en_US
dc.typetexten
dc.typeElectronic Dissertationen
dc.subjectAutismen_US
dc.subjectEveryday Realitiesen_US
dc.subjectHigh Functioning Autismen_US
dc.subjectLived Experiencesen_US
dc.subjectParentsen_US
dc.subjectAsperger'sen_US
dc.subjectLanguage, Reading & Cultureen_US
thesis.degree.namePh.D.en_US
thesis.degree.leveldoctoralen_US
thesis.degree.disciplineGraduate Collegeen_US
thesis.degree.disciplineLanguage, Reading & Cultureen_US
thesis.degree.grantorUniversity of Arizonaen_US
dc.contributor.advisorGilmore, Perryen_US
dc.contributor.committeememberGilmore, Perryen_US
dc.contributor.committeememberRuiz, Richarden_US
dc.contributor.committeememberFletcher, Todden_US
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