Puerto Rican Adolescents Striving to Live a Normal Life with HIV: A Grounded Theory

Persistent Link:
http://hdl.handle.net/10150/194481
Title:
Puerto Rican Adolescents Striving to Live a Normal Life with HIV: A Grounded Theory
Author:
Rodriguez, Janet
Issue Date:
2009
Publisher:
The University of Arizona.
Rights:
Copyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.
Abstract:
According to the Puerto Rico Health Department as of January 2008, 258 cases of HIV, ages 10 -19 had been reported and 224 cases of AIDS, ages 13-19 (Puerto Rico Health Department, 2008). The purpose of this research was to describe the basic social processes of medication adherence in Puerto Rican youth who are HIV positive. Three research questions were proposed: 1) What are the basic social processes of medication adherence in Puerto Rican youth who are HIV- positive?; 2) What factors influence medication adherence (or nonadherence) among HIV- positive adolescents?; 3) What behaviors indicate that the HIV- positive adolescents adhere or do not adhere to their prescribed medications? The Autonomy Development of Adolescence by Steinberg provided the theoretical framework for this study. Grounded theory was used to study 13 Puerto Rican HIV-positive adolescents. Data collection included semi-structured, in-depth interviews, field notes, participant observation, and a demographic questionnaire. A substantive theory Striving to Live a Normal Life, with the core category of normal emerged from data analysis. Striving to Live a Normal Life explains how these Puerto Rican HIV-positive adolescents try to integrate their HIV status and treatment with their lives. These adolescents concentrate their lives on striving to live a normal life. A variety of ways is used to deal with HIV and has helped them visualize themselves as a normal adolescent with a normal life. Because they see themselves having a normal life, taking or not taking their medications for HIV is also seen as a normal part of their lives. This study suggests the beginning of understanding the concept and process of normalization in this population. These findings support the findings in a study done with HIV-positive adolescents from France in which the concept of normality was related to their lives. It also informs interventions to promote improved medication adherence among Puerto Rican youth who are HIV -positive.
Type:
text; Electronic Dissertation
Keywords:
Grounded Theory; Medication Adherence; Normal Life; Puerto Rican HIV-Positive Adolescent; Puerto Rico
Degree Name:
Ph.D.
Degree Level:
doctoral
Degree Program:
Nursing; Graduate College
Degree Grantor:
University of Arizona
Advisor:
Jones, Elaine
Committee Chair:
Jones, Elaine

Full metadata record

DC FieldValue Language
dc.language.isoENen_US
dc.titlePuerto Rican Adolescents Striving to Live a Normal Life with HIV: A Grounded Theoryen_US
dc.creatorRodriguez, Janeten_US
dc.contributor.authorRodriguez, Janeten_US
dc.date.issued2009en_US
dc.publisherThe University of Arizona.en_US
dc.rightsCopyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.en_US
dc.description.abstractAccording to the Puerto Rico Health Department as of January 2008, 258 cases of HIV, ages 10 -19 had been reported and 224 cases of AIDS, ages 13-19 (Puerto Rico Health Department, 2008). The purpose of this research was to describe the basic social processes of medication adherence in Puerto Rican youth who are HIV positive. Three research questions were proposed: 1) What are the basic social processes of medication adherence in Puerto Rican youth who are HIV- positive?; 2) What factors influence medication adherence (or nonadherence) among HIV- positive adolescents?; 3) What behaviors indicate that the HIV- positive adolescents adhere or do not adhere to their prescribed medications? The Autonomy Development of Adolescence by Steinberg provided the theoretical framework for this study. Grounded theory was used to study 13 Puerto Rican HIV-positive adolescents. Data collection included semi-structured, in-depth interviews, field notes, participant observation, and a demographic questionnaire. A substantive theory Striving to Live a Normal Life, with the core category of normal emerged from data analysis. Striving to Live a Normal Life explains how these Puerto Rican HIV-positive adolescents try to integrate their HIV status and treatment with their lives. These adolescents concentrate their lives on striving to live a normal life. A variety of ways is used to deal with HIV and has helped them visualize themselves as a normal adolescent with a normal life. Because they see themselves having a normal life, taking or not taking their medications for HIV is also seen as a normal part of their lives. This study suggests the beginning of understanding the concept and process of normalization in this population. These findings support the findings in a study done with HIV-positive adolescents from France in which the concept of normality was related to their lives. It also informs interventions to promote improved medication adherence among Puerto Rican youth who are HIV -positive.en_US
dc.typetexten_US
dc.typeElectronic Dissertationen_US
dc.subjectGrounded Theoryen_US
dc.subjectMedication Adherenceen_US
dc.subjectNormal Lifeen_US
dc.subjectPuerto Rican HIV-Positive Adolescenten_US
dc.subjectPuerto Ricoen_US
thesis.degree.namePh.D.en_US
thesis.degree.leveldoctoralen_US
thesis.degree.disciplineNursingen_US
thesis.degree.disciplineGraduate Collegeen_US
thesis.degree.grantorUniversity of Arizonaen_US
dc.contributor.advisorJones, Elaineen_US
dc.contributor.chairJones, Elaineen_US
dc.contributor.committeememberJones, Elaine G.en_US
dc.contributor.committeememberCrist, Janiceen_US
dc.contributor.committeememberKoithan, Maryen_US
dc.identifier.proquest10746en_US
dc.identifier.oclc659753568en_US
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