Northern British Columbian Mothers: Raising Adolescents with Fetal Alcohol Spectrum Disorder

Persistent Link:
http://hdl.handle.net/10150/193580
Title:
Northern British Columbian Mothers: Raising Adolescents with Fetal Alcohol Spectrum Disorder
Author:
Johnston, Mary Suzanne
Issue Date:
2008
Publisher:
The University of Arizona.
Rights:
Copyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.
Abstract:
Northern British Columbian Aboriginal mothers raising adolescents with Fetal Alcohol Spectrum Disorder (FASD) face many challenges. This interpretive ethnography provides an understanding of how these mothers interpreted and responded to their adolescents' FASD. It affirms the experiences of Aboriginal mothers and acknowledges their life stories and those of their adolescent children.The concepts of vulnerability, marginalization, and mothering, conceptualized within the theoretical perspectives of postcolonialism, provided the framework for this study. Postcolonial perspectives were particularly relevant to this research: the explicit aftereffects of colonialism on the well-being of Aboriginal women have shaped the worldview of mainstream society resulting in marginalization and stigmatization. A postcolonial perspective suggests that FASD is a problem compounded by colonization; until the underlying compounding issues are addressed, the incidence of FASD among Aboriginal people will continue to increase.English-speaking Aboriginal women with one or more children between the ages of 14 and 18 years affected by FASD were recruited for the study. Appropriate measures were taken to ensure trustworthiness, verisimilitude, and legitimacy. Data collection included three sequential audio-recorded interviews with eight women over a specific time. Interview data were enhanced by document review, intervals of observation participation, and the examination of other historically and culturally relevant data.The interpretive theory derived from the data, Mothering from the Margins, explains how Aboriginal mothers raise their adolescent children who have FASD. The theory provides a perspective that enables nurses to view mothers with adolescents affected by FASD in an all-encompassing manner, and unifies the experiences of participants mothering adolescents with FASD. Aboriginal mothers of adolescents with FASD continue to experience societal blame and marginalization for consuming alcohol during pregnancy. This study extends the knowledge of how this blaming and marginalization experience plays out in the lives of both mothers and children. The findings debunk the stereotypical myth that Aboriginal mothers are not good mothers. In fact, the findings from this study demonstrate how, despite all the difficulties and challenges faced by study participants, they have demonstrated adaptability, confidence, and care in their mothering roles.
Type:
text; Electronic Dissertation
Keywords:
Aboriginal; Fetal Alcohol Spectrum Disorder; Marginalization; Mothering; Postcolonial; Vulnerability
Degree Name:
Ph.D.
Degree Level:
doctoral
Degree Program:
Nursing; Graduate College
Degree Grantor:
University of Arizona
Advisor:
Boyle, Joyceen S.
Committee Chair:
Boyle, Joyceen S.

Full metadata record

DC FieldValue Language
dc.language.isoENen_US
dc.titleNorthern British Columbian Mothers: Raising Adolescents with Fetal Alcohol Spectrum Disorderen_US
dc.creatorJohnston, Mary Suzanneen_US
dc.contributor.authorJohnston, Mary Suzanneen_US
dc.date.issued2008en_US
dc.publisherThe University of Arizona.en_US
dc.rightsCopyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.en_US
dc.description.abstractNorthern British Columbian Aboriginal mothers raising adolescents with Fetal Alcohol Spectrum Disorder (FASD) face many challenges. This interpretive ethnography provides an understanding of how these mothers interpreted and responded to their adolescents' FASD. It affirms the experiences of Aboriginal mothers and acknowledges their life stories and those of their adolescent children.The concepts of vulnerability, marginalization, and mothering, conceptualized within the theoretical perspectives of postcolonialism, provided the framework for this study. Postcolonial perspectives were particularly relevant to this research: the explicit aftereffects of colonialism on the well-being of Aboriginal women have shaped the worldview of mainstream society resulting in marginalization and stigmatization. A postcolonial perspective suggests that FASD is a problem compounded by colonization; until the underlying compounding issues are addressed, the incidence of FASD among Aboriginal people will continue to increase.English-speaking Aboriginal women with one or more children between the ages of 14 and 18 years affected by FASD were recruited for the study. Appropriate measures were taken to ensure trustworthiness, verisimilitude, and legitimacy. Data collection included three sequential audio-recorded interviews with eight women over a specific time. Interview data were enhanced by document review, intervals of observation participation, and the examination of other historically and culturally relevant data.The interpretive theory derived from the data, Mothering from the Margins, explains how Aboriginal mothers raise their adolescent children who have FASD. The theory provides a perspective that enables nurses to view mothers with adolescents affected by FASD in an all-encompassing manner, and unifies the experiences of participants mothering adolescents with FASD. Aboriginal mothers of adolescents with FASD continue to experience societal blame and marginalization for consuming alcohol during pregnancy. This study extends the knowledge of how this blaming and marginalization experience plays out in the lives of both mothers and children. The findings debunk the stereotypical myth that Aboriginal mothers are not good mothers. In fact, the findings from this study demonstrate how, despite all the difficulties and challenges faced by study participants, they have demonstrated adaptability, confidence, and care in their mothering roles.en_US
dc.typetexten_US
dc.typeElectronic Dissertationen_US
dc.subjectAboriginalen_US
dc.subjectFetal Alcohol Spectrum Disorderen_US
dc.subjectMarginalizationen_US
dc.subjectMotheringen_US
dc.subjectPostcolonialen_US
dc.subjectVulnerabilityen_US
thesis.degree.namePh.D.en_US
thesis.degree.leveldoctoralen_US
thesis.degree.disciplineNursingen_US
thesis.degree.disciplineGraduate Collegeen_US
thesis.degree.grantorUniversity of Arizonaen_US
dc.contributor.advisorBoyle, Joyceen S.en_US
dc.contributor.chairBoyle, Joyceen S.en_US
dc.contributor.committeememberBadger, Terry A.en_US
dc.contributor.committeememberReed, Pamela G.en_US
dc.identifier.proquest10066en_US
dc.identifier.oclc659750482en_US
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